Get ready to WALK A BLOCK for Juvenile Scleroderma in your neighborhood May 1 – 7!
What is WALK A BLOCK for Juvenile Scleroderma?
An awareness building and fundraising event that will assist the Juvenile Scleroderma Network in carrying out its mission. The WALK A BLOCK is not necessarily about a mile, a lap, or a distance, but about our cause...Juvenile Scleroderma!
Who Can Participate?
The walk is structured for anyone to participate no matter where they are located. Teams are encouraged to walk together to fight Juvenile Scleroderma. Become a team leader by arranging a community or company walking team of family, friends, co-workers, and neighbors. Encourage other to help us fight Juvenile Scleroderma. Join now and partner with us as we WALK A BLOCK, push strollers, peddle tricycles, make some noise, gather pledges, and some fun! When you walk, be sure to bring along plenty of pamphlets or information about Juvenile Scleroderma, and pass it out as you go!
Here’s How It Works:
Collect pledges from family, friends, neighbors, school, and work associates. Complete the pledge form. You arrange a time and place to walk. You decide how many blocks to walk. It can be outdoor or indoor.
Want to be part of the WALK A BLOCK without actually walking? Become a VIRTUAL WALKER!
You can still support the Juvenile Scleroderma Network by gathering pledges as a WALK A BLOCK “VIRTUAL WALKER.” Use our pledge form to gather pledges in your community. It’s that simple!
Juvenile Scleroderma is a connective tissue disease involving skin, blood vessels and the immune system. In it’s systemic form, internal organ involvement can occur.
Approximately there are between 5000 to 7000 kids with a form of Juvenile Scleroderma.
Symptoms vary according to each child. Treatment must be tailored to each child.
There are six types of Juvenile Scleroderma:
1. Morphea: patches of thickened, waxy, ivory, or yellow-white shiny lesions.
2. Linear: thickened skin is in the pattern of a line down an arm or leg. Pigment changes both dark and patchy areas of lighter skin. It can interfere with the growth of the limb due to atrophy.
3. Generalized: the lesion are a combination of morphea and linear, and involve almost the entire skin.
4. En Coupe De Sabre: indentation on the forehead or the frontal hairline.
5. Limited: late internal organ involvement if any. Also, known as CREST.
6. Diffuse: generalized skin involvement and early internal organ involvement.
Get the whole country walking for the cause. Encourage your family, friends, co-workers, and neighbors to join us May 1 – 7th for Juvenile Scleroderma Awareness Week and WALK A BLOCK for Juvenile Scleroderma in your neighborhood!
We view this as a mighty cause in which to invest and partake. We need your support!
Because…Kids Get Scleroderma, Too!!!
For a printable version of this document, click here.
For more information on Juvenile Scleroderma, contact:
Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731
Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)
Speak to another JSD parent for emotional and logistical support
provided by home-based JSD volunteers. For medical advice, please
contact your child's physician.
Non-Medical Questions or Comments? Click Here
Medical Questions? The Doctor's In: Q & A