A definition of Juvenile Scleroderma in simple, easy to understand language

 

Summer Camp with a special purpose!

Although JSDN does not have its own camp program, we've found that camps run by the Camp Discovery, the Arthritis Foundation, Hole in the Wall Camps and many other worthwhile non-profit organizations provide wonderful experiences for children with chronic diseases.

To make sure every child with juvenile scleroderma has an opportunity to attend one of these camps, JSDN will help pay for the session. All children with juvenile scleroderma who are JSDN members are eligible. Find a camp, and then let us know the name of the camp and the telephone number of the camp director. Camp Discovery and Hole in the Wall Camps pay the total fee for the camper; and many AF camps are already aware of JSDN's offer. JSDN pays the portion of the expenses that is not covered by the sponsoring organization. Once your doctor determines that the camp is suitable for your child, let the camp director know of JSDN’s offer. Then complete the camp scholarship form and ask your camp director to return it to JSDN. You may also want to look over the complete camp scholarship guidelines. We’ll also ask you to let us know about your child’s experience at the camp.

You can find the camp nearest you by going to:

Camp Discovery www.campdiscovery.org
Arthritis Foundation www.arthritis.org
Hole in the Wall Camps www.holeinthewallcamps.org

You may also find local camps run by hospitals, patient groups or other agencies.

If you are not already a JSDN member, you will need to join now (click here for more info). In this first year of the camp program, we may need to limit the amount paid by JSDN if the number of applicants and amount request for camp scholarships exceeds our available funds. Camp scholarships will be approved in the order that they are received. So don’t delay!

Camp may be the only time during the year that lets them forget about doctor appointments and blood tests. They get a chance to meet other kids with similar experiences who they can talk openly about their fears. This is their time for growth and independence, supported by dedicated people.

Grab your child, find a camp, and stock up on sunscreen! We can’t wait to hear about your child's experience at camp this summer! If you have any questions about the JSDN camp scholarship program, please call or e-mail us at campinfo@jsdn.org.


For more information on Juvenile Scleroderma, contact:

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731

Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)

Speak to another JSD parent for emotional and logistical support provided by home-based JSD volunteers. For medical advice, please contact your child's physician.

Non-Medical Questions or Comments? Click Here
Medical Questions? The Doctor's In: Q & A

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