A definition of Juvenile Scleroderma in simple, easy to understand language

 

Healthcare Professionals

Welcome!  The Healthcare Professionals section has been developed for pediatricians, school nurses, and other healthcare professionals who work with children, and have a significant role to children with juvenile scleroderma as well as their parents. 

Our goal is to connect with healthcare professionals to enhance quality care and increase access to care for children with juvenile scleroderma. 

The JSDN offers at no charge to all healthcare professionals to receive our For Kids' Sake newsletter and What is Juvenile Scleroderma? brochure.  If you are not currently receiving a newsletter and/or need brochures for your clinic, please click here to email your request.  In return if you could please refer your patient's families to us for support, educational materials, newsletter, and other programs and services for the whole family.

The JSDN has a very impressive group of pediatric rheumatologist and other healthcare professionals who have volunteered to be part of a formal Medical Advisory Board.  They all work long hours and are dedicated to making the lives of children better. 

All healthcare professionals are invited to consult via email with juvenile scleroderma specialist colleagues who serve on our Medical Advisory Board.

Pediatric Rheumatology Assistance:

Thomas J.A. Lehman, MD
Chief, Division of Pediatric Rheumatology, Hospital for Special Surgery; Professor of Clinical Pediatrics, Weill Cornell Medical Center
goldscout@aol.com
 


Ronald M. Laxer, MD, FRCPC
Vice President, Clinical and Academic Affairs, The Hospital for Sick Children; Professor of Pediatrics and Medicine, University of Toronto
ronald.laxer@sickkids.ca 


Terry L. Moore, M.D.
Director of Pediatric Rheumatology and Rheumatology, Professor of Pediatrics, Internal Medicine, and Molecular Microbiology and Immunology, Saint Louis University School of Medicine

mooretl@slu.edu
Franceso Zulian, M.D.
Professor, Department of Pediatrics, University of Padova, Italy;
Chairman, Juvenile Scleroderma Working Group of PRES (Pediatric
Rheumatology European Society)
zulian@pediatria.unipd.it

 

Pediatric Dermatology Assistance:

Bernice Krafchik, M.D.
Professor Emeritus, University of Toronto
krafchik3@hotmail.com


Pychological Assistance:

Vanessa L. Malcarne, Ph.D.
Professor, Department of Psychology, San Diego State University
malcarne@psychology.sdsu.edu 



For more information on Juvenile Scleroderma, contact:

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731

Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)

Speak to another JSD parent for emotional and logistical support provided by home-based JSD volunteers. For medical advice, please contact your child's physician.

Non-Medical Questions or Comments? Click Here
Medical Questions? The Doctor's In: Q & A

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