A definition of Juvenile Scleroderma in simple, easy to understand language

 

Help Support The Juvenile Scleroderma Network!

Adults aren't the only ones who get Scleroderma. The term "scleroderma" is used to describe a group of different conditions which share the common feature of hard, tight, non-elastic skin, and subcutaneous tissues. Although scleroderma is not rare and has been recognized in children for over 100 years, it is still difficult for most pediatricians to make the diagnosis.

Unfortunately, there is no cure for juvenile scleroderma. Unlike the other rheumatic diseases, there is no drug that reliably controls the progression of the abnormal process, but there is hope!

The Juvenile Scleroderma Network is working to provided educational and emotional support to children with scleroderma and related diseases.

How does your Tax-deductible Donation Help?

  • An informative website that helps give worldwide educational and emotional support
  • provides an educational newsletter 2 times a year (click here to read a sample newsletter )
  • provides literature on Juvenile Scleroderma
  • provides 24 hour 800-number support line
  • provides 24 hour online support
  • provides Family Outreach Program
  • provides Keypals for Kids and Teens
  • sponsors Summer Camp Scholarships
  • sponsors fundays and fund-raisers
  • promotes a national Juvenile Scleroderma awareness week
  • provides pediatric rheumatology referrals
  • provides a JSD Database
  • and more . . .

Let Us Help You, By You Helping Us!

Membership in the JSDN keeps the For Kids' Sake newsletter, coming to you. We strive to pack every issue with enlightening and empowering information on JSD. The For Kids' Sake newsletter is published twice a year. We encourage all children who want to write a poem, draw a picture, or tell us about a special occasion. We would like to include them in our newsletter.

Membership is much more than receiving the invaluable newsletter:

  • It is joining a team of other families fighting the same battle.
  • It is sharing your personal stories with other families.
  • It is knowing that you and your family are no longer alone.

Your tax-deductible membership to the JSDN means you are doing something about JSD!

Please keep in mind, the JSDN programs and services would not be possible for families if it weren't for our generous donors and membership to the JSDN!

Without your generous help the JSDN will no longer be able to exist! Many families rely on the JSDN for help.

The JSDN does not receive any money from other scleroderma and related diseases organizations.

The JSDN Wish List:
Office Depot Gift Cards
Stamps - .39 cents to a $1.00
Donations
Teddy Bears
Printing
Volunteers
Membership
Grant Writer(s)
Employee Matching Gifts
Color and Black Inkjet Print Cartridges - HP Deskjet 932C
Public Relations
Contributions
Fundraisers
Advertising Opportunities

We greatly appreciate everything you can do for the JSDN and the juvenile scleroderma cause!

Donations to the Network are deductible to the fullest extent allowed by the IRS.

Click here for a printable membership form, or click here to become a member online!

Click here for a printable donation form, or click here to make a donation online!

Other Ways You Can Help?

Become a JSDN Volunteer, we need you!

Organize a fundraising activity, conduct a health fair, become a juvenile scleroderma advocate, or promote public awareness.  All volunteer help can be done locally or nationally.  today to learn more about how you can help volunteer for the JSDN.

"Volunteering can be an exciting, growing, enjoyable experience. It is truly gratifying to serve a cause, practice one's ideals, work with people, solve problems, see benefits, and know one had a hand in them." --Harriet Naylor


For more information on Juvenile Scleroderma, contact:

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731

Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)

Speak to another JSD parent for emotional and logistical support provided by home-based JSD volunteers. For medical advice, please contact your child's physician.

Non-Medical Questions or Comments? Click Here
Medical Questions? The Doctor's In: Q & A

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Updates and New Pages by
GBST Media Services

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