Privacy Policy Statement

This is the web site of the Juvenile Scleroderma Network.
Our postal address is 
1204 West 13th Street 
San Pedro, CA 90731 
We can be reached via e-mail at jsdninfo@jsdn.org
or you can reach us by telephone at (310) 519-9511 

For each visitor to our Web page, our Web server automatically recognizes no information regarding the domain or e-mail address.

We collect the e-mail addresses of those who communicate with us via e-mail, aggregate information on what pages visitors access or visit, information volunteered by the consumer, such as survey information and/or site registrations.

The information we collect is used to improve the content of our Web page, used to customize the content and/or layout of our page for each individual visitor, used to notify consumers about updates to our Web site, not shared with other organizations for commercial purposes.

With respect to cookies: We do not set any cookies.

If you do not want to receive e-mail from us in the future, please let us know by sending us e-mail at the above address, visiting us at http://www.jsdn.org  

If you supply us with your postal address on-line you may receive periodic mailings from us with information on new programs or upcoming events. If you do not wish to receive such mailings, please let us know by sending us e-mail at the above address, visiting us at http://www.jsdn.org  Please provide us with your exact name and address. We will be sure your name is removed from the list.

Persons who supply us with their telephone numbers on-line may receive telephone contact from us with information regarding new programs or upcoming events. If you do not wish to receive such telephone calls, please let us know by sending us e-mail at the above address. Please provide us with your name and phone number. We will be sure your name is removed from the list.

With respect to Ad Servers: We do not partner with or have special relationships with any ad server companies.

From time to time, we may use customer information for new, unanticipated uses not previously disclosed in our privacy notice. If our information practices change at some time in the future we will post the policy  changes to our Web site to notify you of these changes and provide you with the ability to opt out of these new uses. If you are concerned about how your information is used, you should check back at our Web site periodically.

Visitors may prevent their information from being used for purposes other than those for which it was originally collected by calling us at the number provided above.

Upon request we offer visitors the ability to have inaccuracies corrected in contact information. Visitors can have this information corrected by sending us e-mail at the above address. With respect to security: We have appropriate security measures in place in our physical facilities to protect against the loss, misuse or alteration of information that we have collected from you at our site.

If you feel that this site is not following its stated information policy, you may contact us at the above address or phone number.