A definition of Juvenile Scleroderma in simple, easy to understand language


JSDN - Family Outreach Program

Every parent can use support. No matter how great or small the need. With the JSDN -Family Outreach Program you will be put in touch with other families in your geographic area. You will receive the support when you need it by a Family Outreach Volunteer Parent.

If you would like to be contacted by a Family Outreach Volunteer Parent in your geographic area, please click here.

JSDN - Family Outreach Volunteer Parents we need you!

A Family Outreach Volunteer Parent meets individually if feasible or you can communicate through email or phone with the families of newly diagnosed children with juvenile scleroderma. The Family Outreach Volunteer Parent answers questions, provides information and educational resources available through the JSDN.

We encourage you to become involved and help provide support and friendship to the newly diagnosed families of a child with juvenile scleroderma today!

* Please note…You have to be a member to the JSDN to become a JSDN – Family Outreach Volunteer Parent.

If you are interested in becoming a JSDN – Family Outreach Volunteer Parent, please click here.

For more information on Juvenile Scleroderma, contact:

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731

Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)

Speak to another JSD parent for emotional and logistical support provided by home-based JSD volunteers. For medical advice, please contact your child's physician.

Non-Medical Questions or Comments? Click Here
Medical Questions? The Doctor's In: Q & A

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