A definition of Juvenile Scleroderma in simple, easy to understand language
 
The Do's and Don'ts of Juvenile Scleroderma
Written by Thomas J.A. Lehman, M.D.
Chief, Pediatric Rheumatologist
New York, NY
1999

Do’s

  • Keep your child dressed warmly in the winter
  • Pay careful attention to cuts and scrapes and watch out for infections
  • Make sure your child takes their medication as instructed
  • Keep your doctor’s appointments and make sure you tell the doctor about any new or unusual developments
  • Make sure your child eats a healthy and balanced diet
  • Discipline your child just like you would if they didn’t have scleroderma

Don'ts

  • Don’t make your child think they are special because they have scleroderma. They are simply normal children who happen to have scleroderma.
  • Don’t let them do foolish things like go out in the cold without gloves
  • Don’t skip your child’s doctors appointments
  • Don’t chase ‘miracle cures’ and ‘health supplements without proven therapeutic benefit
  • Don’t forget to tell your child’s doctor if your child are taking ‘supplements.’ They may interact with your child’s medication.

Please keep in mind, this webpage is for your information only.
Please check with your child's physician for any treatments.


For more information on Juvenile Scleroderma, contact:

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street, San Pedro, CA 90731

Tel: (310)519-9511 (Pacific Time)
24 Hour Support Line: 1-866-338-5892 (toll-free)

Speak to another JSD parent for emotional and logistical support provided by home-based JSD volunteers. For medical advice, please contact your child's physician.

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